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PRE-CONFERENCE:
Tuesday, June 23rd: 8:00 PM EST
Live Pre-Conference Webinar with renowned behavioral child neurologist and researcher, Dr. Richard E. Frye, MD, PhD. Dr. Frye will share his latest research on treating folate metabolic abnormalities in children and what these emerging discoveries could mean for SATB2.
The SATB2 Gene Foundation is pleased to provide this session with Dr. Frye based on the interests of our community. The information provided is for informational purposes only, and should not be taken as specific medical advice. Decisions about your child’s treatment options should always be discussed with your primary care team. The views expressed during this session belong to Dr. Frye and do not necessarily represent the views of the SATB2 Gene Foundation.
Wednesday, July 22nd: 5:30 PM – 7:30 PM
Conference Registration and light hors d’oeuvres (Dinner on your own or at the hotel is still suggested). Come check in and meet other SAS families during our registration hours.
Thursday, July 23rd: 9:00 AM – 3:00 PM
Conference Sessions, Roundtables, and Childcare. Lunch is provided from Noon to 1 PM. Breakfast is on your own (and provided by hotel for hotel guests). At conclusion of sessions, group photo – Wear your favorite SAS swag!
Thursday, July 23rd: 7:00 PM – 9:00 PM
Family Social. Dinner on your own and then join us for more social time together for our Family Social. Light desserts served with lots of fun activities and music planned so families can continue the conversations and connections!
Friday, July 24th: 9:00 AM – 3:00 PM
Conference Sessions, Roundtables, and Childcare. Lunch is provided from Noon to 1 PM. Breakfast is on your own (and provided by hotel for hotel guests).
This year will feature speakers from a range of topics supporting families at various stages of life. We are also introducing a more robust roundtable forum to allow more parent led discussions on topics that matter most. Based on previous year’s feedback, the roundtables have been a highlight of in-person attendance.
A Note about virtual registration: Your virtual registration will get you access to the pre-conference session with Dr. Frye, bonus pre-recorded sessions, and live sessions and presentations. However, virtual tickets do not gain access to the roundtables, which are held exclusively for in-person attendees only.
New this year: Expanded offerings of Parent Moderated Roundtables with a variety of topics including Puberty, Sleep Challenges, IEPs, Sibling Support, AAC in Real Life, Dad’s Discussion, Building Your Village, Finding Community Supports, Life Post-High School, Housing Options, New to the Diagnosis, Meaningful Adult Life and More! Exclusive for In-Person attendees only.
We want to make sure we offer what matters to you? Once you register, you will receive a link to complete a Roundtable survey interest form. Please complete the survey and to make sure your voice is heard. While we can’t promise to cover every topic, we are committed to covering as many as possible.