SATB2-Associated Syndrome Family & Medical Conference

💜 July 22-24, 2026 💜 Oklahoma City, OK (USA) 💜

This is Our Story: Every Voice, Every Chapter

The Chapters Ahead

A Snapshot of Our Schedule

Check back for updates on our exact sessions and speakers as we get closer. We are in process of building a robust agenda to meet a wide range of topics for our entire community.

PRE-CONFERENCE: Tuesday, June 23rd: 8:00 PM EST
Live Pre-Conference Webinar with renowned behavioral child neurologist and researcher, Dr. Richard E. Frye, MD, PhD. Dr. Frye will share his latest research on treating folate metabolic abnormalities in children and what these emerging discoveries could mean for SATB2.
Wednesday, July 22nd: 5:30 PM – 7:30 PM
Conference Registration and light hors d’oeuvres (Dinner on your own or at the hotel is still suggested). Come check in and meet other SAS families during our registration hours.
Thursday, July 23rd: 9:00 AM – 3:00 PM
Conference Sessions, Roundtables, and Childcare. Lunch is provided from Noon to 1 PM. Breakfast is on your own (and provided by hotel for hotel guests). At conclusion of sessions, group photo.
Thursday, July 23rd: 7:00 PM – 9:00 PM
Family Social. Dinner on your own and then join us for more social time together for our Family Social. Light desserts served with lots of fun activities and music planned so families can continue the conversations and connections!
Friday, July 24th: 9:00 AM – 3:00 PM
Conference Sessions, Roundtables, and Childcare. Lunch is provided from Noon to 1 PM. Breakfast is on your own (and provided by hotel for hotel guests).

This year will feature speakers from a range of topics supporting families at various stages of life. We are also introducing a more robust roundtable forum to allow more parent led discussions on topics that matter most. Based on previous year’s feedback, the roundtables have been a highlight of in-person attendance. Once you have registered for the conference, you will receive a link to complete a roundtable survey so we can better refine topics relevant to our in-person attendees.

A Note about virtual registration: Your virtual registration will get you access to the pre-conference session with Dr. Frye, bonus pre-recorded sessions, and live sessions and presentations. However, virtual tickets do not gain access to the roundtables, which are held exclusively for in-person attendees only.

Sessions & Topics

We are pleased to share information on session topics and expanded roundtable offering for this year’s conference. Be sure to check back often for more speaker and topic updates!

– Clinical and Research Updates by Dr. Zarate
– Genetics 101 and Registry Updates by Katie Bosanko
– Research Updates by Dr. Zarate
– Parent to Parent: The Road Ahead (A SATB2 parent led panel)
– Gene Therapy Updates by Dr. Lisowski
– Mapping the Future: Building a Path to a Robust and Exciting Life, by Stephanie and Todd Watkins
– Crafting Your Story, by Allison Kaczenski and Julie Hamburg
– SATB2 Behaviors by Dr. Bottoms, followed by a real life parent panel to discuss strategies
– Getting Started with AAC
– Durable Medical Equipment, How to navigate

New this year: Expanded offerings of Parent Moderated Roundtables with a variety of topics including Puberty, Sleep Challenges, IEPs, Sibling Support, AAC in Real Life, Dad’s Discussion, Building Your Village, Finding Community Supports, Life Post-High School, Housing Options, New to the Diagnosis, Meaningful Adult Life and More! Exclusive for In-Person attendees only.

We want to make sure we offer what matters to you? Once you register, you will receive a link to complete a Roundtable survey interest form. Please complete the survey and to make sure your voice is heard. While we can’t promise to cover every topic, we are committed to covering as many as possible.

Our Speakers

Our speakers include key experts in the SATB2-Associated Syndrome field, advocates, parents and caregivers and more, each contributing a chapter of their own.

Yuri Zarate, MD, MBA
University of Kentucky

Natashia Bottoms, MD
Arkansas Children’s Hospital

Katie Bosanko, Arkansas Children’s Hospital

Allison Kaczenski, Founder, SATB2 Gene Foundation

Dr. Leszek Lisowski, Children’s Research Institute

Coming Soon

Coming Soon

Coming Soon

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